Okay - so I got a call this morning from the EEG Dept. at the hospital. We are scheduled for Monday. I feel like a really large weight has been lifted off of my shoulders. I hate that we have to wait another 5 days but it's better than 5 months. The next challenge begins... how on earth do you get a 3.5 yr old little boy to lay still on a stretcher for 2.5 hrs? He can't have a video game to play because it causes too much stimulation and may alter the effect of the EEG. I'm not sure if we will have enough books to read for that long. Perhaps he'll fall asleep after a while? That's if we can even get him to lay down! I've got 5 days to try and figure out how to do this. I'm sure the technicians will have some techniques, but... what do you do with a child that has a hard time transitioning into places that are not familiar. It'll probably take an hour just to calm him down enough to hook the electrodes onto his little head! Let's hope they are kid friendly and everything goes off without a hitch.
I sat down and asked S last night, if there was anything I could do to make him feel better. He just looked at me with sad eyes, sat down on my lap and put his head on my chest. I felt so bad for him. He is playing like a normal child, gets mad at his brothers, tries to communicate the best he can, gets excited about things at the right times, but when you tell him he can't do something he just looks sad and turns around to walk away. He's not having as many temper tantrums as he had before, it's like he's internalizing his anger. Is it psychological?
I'm feeling a bit better today, mentally, but have decided that I am going to finish up the week here at work, then take a couple of weeks off. I can't focus on my daily work with all of this stuff lingering over me. My career is a stressful one on a normal day... add this to the mix, it's like a snowball effect. All I can do is hope for strength to get through each day.
I sat down and asked S last night, if there was anything I could do to make him feel better. He just looked at me with sad eyes, sat down on my lap and put his head on my chest. I felt so bad for him. He is playing like a normal child, gets mad at his brothers, tries to communicate the best he can, gets excited about things at the right times, but when you tell him he can't do something he just looks sad and turns around to walk away. He's not having as many temper tantrums as he had before, it's like he's internalizing his anger. Is it psychological?
I'm feeling a bit better today, mentally, but have decided that I am going to finish up the week here at work, then take a couple of weeks off. I can't focus on my daily work with all of this stuff lingering over me. My career is a stressful one on a normal day... add this to the mix, it's like a snowball effect. All I can do is hope for strength to get through each day.
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